Living with disability

[Amy SF]

Living with one or more disability, whether physical or mental, is challenging these days, even in the 21st century, with greater acceptance and understanding. As someone who has had to recuperate from hip surgery and has other physical challenges, I don’t think of myself as “disabled”, just someone with medical issues. Here’s a video that I think is worth watching on the subject.

Watch: Things People With Disabilities Wish You Knew

Who here has medical issues that would label you as “disabled”? How do you feel about it? What kind of challenges have you faced because of it?

 

[Val]

Living with one or more disability, whether physical or mental, is challenging these days, even in the 21st century, with greater acceptance and understanding. As someone who has had to recuperate from hip surgery and has other physical challenges, I don’t think of myself as “disabled”, just someone with medical issues. Here’s a video that I think is worth watching on the subject.

Watch: Things People With Disabilities Wish You Knew

Who here has medical issues that would label you as “disabled”? How do you feel about it? What kind of challenges have you faced because of it?

I'm partly disabled (for now, not for the rest of my life) because of progressive peripheral nervous system polineuropathy. Now we are trying to formalize the disability-adjusted life year which implies the local reimbursement, because we simply need more money on food, transportation and medicines. When i couldn't walk at all and had to ride a wheelchair, i could feel "all the joy" of being disabled here, because our government still doesn't care about disabled people at all. E.g. there are no ramps or elevators for wheelchairs, no social cab services, no discounts on strong expensive foreign drugs, etc, etc... But wheelchairs, crutches, go-carts and canes are not pricey though. Honestly, i'm fed up with all this, i wanna be normal again, but it's not that easy. This condition is gonna be with me forever,- all i gotta do is reduce symptoms with drugs, vitamins and healthy eating. All i want for now is to be able to work and travel again. F***ing doctors used to say that i would never walk again, but screw doctors! I'm walking.

 

[Poppy]

That was a good video, @Amy SF , thanks.

I think our experiences are quite different from those women in the clip because Kelly's disabilities include not only her health but her mental abilities as well. She is so happy living among her peers, it's just been wonderful.

 

[Skylark]

I heard someone in a radio interview say that “We are all temporarily-abled.” This is in reference to almost everyone losing mobility, hearing, sight, etc, with advanced age. Unfortunately this hasn’t contributed to mass numbers of able-bodied people adapting the world to the needs of everyone.

 

[vegannatasha]

I have severe illnesses and it's a nightmare. I'm a hermit very lonely. Wish I was not here.

 

[silva]

I have severe illnesses and it's a nightmare. I'm a hermit very lonely. Wish I was not here.

Hi Natasha! I guess it's not enough for most people, but we're all internet friends here!
Glad to meet you!

 

[vegannatasha]

Thanks. Glad 2 meet u 2.

 

[KLS52]

I have severe illnesses and it's a nightmare. I'm a hermit very lonely. Wish I was not here.

 

[Val]

I have severe illnesses and it's a nightmare. I'm a hermit very lonely. Wish I was not here.

Hi Natasha! And . You're not alone in having chronic diseases and severe illnesses. I have quite a bad form of polyneuropathy (to be honest, i'm still lucky, as it could have been much worse). I'm sure, together we can stand against all our troubles. Here, you can tell and discuss everything you need to. We're here for you to help.

 

[Amy SF]

I'm partly disabled (for now, not for the rest of my life) because of progressive peripheral nervous system polineuropathy. Now we are trying to formalize the disability-adjusted life year which implies the local reimbursement, because we simply need more money on food, transportation and medicines. When i couldn't walk at all and had to ride a wheelchair, i could feel "all the joy" of being disabled here, because our government still doesn't care about disabled people at all. E.g. there are no ramps or elevators for wheelchairs, no social cab services, no discounts on strong expensive foreign drugs, etc, etc... But wheelchairs, crutches, go-carts and canes are not pricey though. Honestly, i'm fed up with all this, i wanna be normal again, but it's not that easy. This condition is gonna be with me forever,- all i gotta do is reduce symptoms with drugs, vitamins and healthy eating. All i want for now is to be able to work and travel again. F***ing doctors used to say that i would never walk again, but screw doctors! I'm walking.

@Val I re-read your post, and I’m thinking, you need the Russian version of the Americans with Disabilities Act. Is there any way such legislation could be introduced and promoted in your country’s government?

Americans with Disabilities Act of 1990 - Wikipedia

 

[Val]

Is there any way such legislation could be introduced and promoted in your country’s government?

[URL='https://en.m.wikipedia.org/wiki/Americans_with_Disabilities_Act_of_1990']Americans with Disabilities Act of 1990 - Wikipedia[/URL]

Actually, we have a similar law. I didn't find it in English, but here it is.
Федеральный закон о социальной защите инвалидов в РФ
It's called somewhat like "Federal law since Nov.24, 1995, N.181-Ф3. About social protection of people with disabilities in Russian Federation". (Sorry for my bad English).
But... nobody wants to fight with the government. Therefore not very much is being done IRL.
What about me,- thank god, i'm not disabled now. All i need, is to have a seat in the subway train, and people (if they see my seat-cane) willingly stand up and offer me to take a seat. Plus, sometimes they offer me help in other accidental things. Russians, in general, have a generous heart, and most of them are very attentive to other people's needs and troubles, and ready to help. I wish our laws were kind to people enough, so they could feel safe and protected and have confidence in the future .

 

[vegannatasha]

Thanks Val. It's really really hard to deal with.

 

[vegannatasha]

hi kls52

 

[Blues]

I have severe illnesses and it's a nightmare. I'm a hermit very lonely. Wish I was not here.

Well I am pleased you are here vagannatasha and looking forward to reading your posts

 

[vegannatasha]

Thanks.