Health Issues Cancer
- Thread starter Kasandra
- Start date
Chryssie
Internet Junkie
GingerFoxx
No effin' whey!
MRI is scheduled for 6am on Wednesday... Fingers crossed.
This. I hope everything turns out OK, GingerFoxx.Kassandra and GingerFoxx
(((((((Kasandra)))))))
ledboots
Peace
GingerFoxx
No effin' whey!
They told him results would be in withing 24 to 48 hours. This morning will be 24 hours, so he's going to call at least once today to see where things are at. I am anxious to have more information. The unknown can be so much worse than the known.
OP
OP
GingerFoxx
No effin' whey!
So the MRI results came back... totally normal. They didn't find anything. They want to schedule him for yet ANOTHER endoscopy. I don't understand how they can not know where this cancer is. We are both so frustrated now.
ledboots
Peace
That is good news, it seems to me, because if it was large or widespread, they probably would have seen something. Frustrating, though. Did they talk about a PETscan too? I looked up a couple things and found this ↓, I had never heard of this type of cancer before, tbh.
"Advances in nuclear medicine imaging, also known as molecular imaging, has improved diagnostic and treatment paradigms in patients with neuroendocrine tumors. This is because of its ability to not only identify sites of disease but also characterize them. Neuronedocrine tumours express somatostatin receptors providing a unique target for imaging. Octreotide is a synthetic modifications of somatostatin with a longer half-life. OctreoScan, also called somatostatin receptorscintigraphy (SRS or SSRS), utilizes intravenously administered octreotide that is chemically bound to a radioactive substance, often indium-111, to detect larger lesions with tumor cells that are avid for octreotide.
Somatostatin receptor imaging can now be performed with positron emission tomography (PET) which offers higher resolution, three-dimensional and more rapid imaging. Gallium-68 receptor PET-CT is much more accurate than an OctreoScan.
[53]Imaging with fluorine-18 fluorodeoxyglucose (FDG) PET is also valuable to image neuroendocrine tumors.[54] This scan is performed by injected radioactive sugar intravenously. Tumors that grow more quickly use more sugar. Using this scan, the aggressiveness of the tumor can be visualised.The combination of somatostatin receptor and FDG PET imaging is able to quantify somatostatin receptor cell surface (SSTR) expression and glycolytic metabolism, respectively.[54] The ability to perform this as a whole body study is highlighting the limitations of relying on histopathology obtained from a single site. This is enabling better selection of the most appropriate therapy for an individual patient."
http://en.m.wikipedia.org/wiki/Neuroendocrine_tumor
GingerFoxx
No effin' whey!
He already had the octreotide scan and a few other things. They were able to conclusively tell him it's neuroendocrine cancer, but they can't seem to find it. You must understand, much the frustration arises from the fact that, his entire life, everything that is ever wrong with him seems to display atypical symptoms or be something "people his age don't get" so it takes doctors forever to find what's wrong with him, while he suffers. Not to mention, he tends not to respond well to common treatments for most things. This could be a very drawn out process. I should have known better than to think it would be straightforward this time around.
Oh, man, big hugs, GingerFoxx. I hope they get to the bottom of it soon.
OP
OP
Ginger Foxx, I can relate to the frustration, the unknown also tends to lead to so much anxiety. I am too scared to ask my dad what the prognosis is. How long his still got to live. I know the bone cancer has spread everywhere. We are heading towards the 3rd set of chemo on the 3rd of September. I hope and pray his body is strong enough to deal with the chemo.
Its such an emotional rollercoaster.
Its such an emotional rollercoaster.
Ann Chovie
Ploughing my own furrow
- Joined
- Apr 4, 2013
- Reaction score
- 417
Ann Chovie
Ploughing my own furrow
- Joined
- Apr 4, 2013
- Reaction score
- 417
ledboots
Peace
OP
OP
Hi Ann Chovie
Its not easy, the realisation that my dad is dying hits me every now and again, I am just trying to visit and be there for him when ever I can.
The chemo makes him sick but he has about 2 weeks before the next session where he feels better.
It does seem to help with pain management.
its just hard cause one dont always know how to deal with it all.
And one dont know how much time is left.
OP
OP
its been awhile since i posted, and i apologise for that. Its been a tough journey so far and very emotional. my dad is going for his last #6 session on the 7th of november, its been hard to see him age so much and feeling so fragile and vulnerable. His had a blood transfusion recently and his feeling stronger and eating better. After the chemo is going for bone cancer injections and I assume the Dr will then start Radiation to control any pain.
On the positive side from the latest flikker test, it showed the cancer has not spread any further...
We are all in a good place at the moment, but still I just always feel this sadness within me.... Trying to make the most of every moment and day, its just very hard.... knowing there is a time bomb, which can explode any day or time.
On the positive side from the latest flikker test, it showed the cancer has not spread any further...
We are all in a good place at the moment, but still I just always feel this sadness within me.... Trying to make the most of every moment and day, its just very hard.... knowing there is a time bomb, which can explode any day or time.
- Joined
- Jun 4, 2012
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- 19,521
- Age
- 65
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- I'm liek, in Cali, dude.
- Lifestyle
- Vegetarian
Best wishes to you, your dad and your family. And as for you, don't forget to get plenty of rest, eat right, get exercise. You need to stay strong and healthy for you, your dad and your family.
